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Xeroderma Pigmentosum

Self Help Clearinghouse

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Xeroderma Pigmentosum Society

International network. Founded 1995. Provides sharing of support, information and coping skills for families affected by xeroderma pigmentosum. Annual newsletter. Promotes research into finding a cure. Information and referrals, phone support, conferences, literature, advocacy in community, education and protection. Camp Sundown for patients of all ages and their families.
Write:
XP Society
437 Snydertown Rd.
Craryville, NY 12521
Voice: 518-851-3466
Website: http://www.xps.org
Verified: 7/17/2013

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Classes & Events

  • Oct
    27
    Monday
    10:00 AM - 11:00 AM
    Yoga for Arthritis is a medically-based yoga class specifically designed to improve pain and mobility. This class is for people experiencing joint pain.
  • Oct
    27
    Monday
    6:00 PM - 8:30 PM
    A unique method of relaxed, natural childbirth education, enhanced by self-hypnosis techniques.
  • Oct
    27
    Monday
    6:30 PM - 7:30 PM
    Learn how to avoid negative emotions and behaviors around food when talking about your child’s weight. Learn how to be sensitive, provide praise, keep food positive and how to avoid negative body talk.

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