Skip to Content

Vascular Birthmark

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Vascular Birthmark Foundation

National. Provides support via discussion boards - click on 'FORUMS'; click on RESOURCES>Support Groups> Groups and Foundations. Also has downloadable resources, information and links to other resources.
Write:
VBF
PO Box 106
Latham, NY 12110
Voice: 1-877-823-4646
Website: http://www.birthmark.org
Verified: 9/25/2013

Klippel Trenaunay (KT) Support Group

National. Foinded 1986. Provides support and education for individuals with Klippel Trenaunay, a combined vascualar malformation, and their families.
Write:
K-T Support
1471 Greystone Lane
Milford, OH 45150
Website: http://k-t.org
Verified: 9/17/2013

AVM Survivors

Online. Provides support, information and network for individuals with Arteriovenous Malformation.
Website: http://www.avmsurvivors.org
E-mail: info@bensfriends.org
Verified: 9/13/2013

The Sturge-Weber Foundation

International network. Members in 50 states and internationally. Founded 1987. Mutual support network for families and professionals involved with Sturge-Weber syndrome, Port Wine birthmarks or Klippel Trenaunay syndrome. Disseminates information, funds and facilitates research. Newsletter, e-news monthly, phone support, bi-annual conference, pen pals and active e-mail support group. Educational materials for schools, parents and clinicians.
Write:
The Sturge-Weber Foundation
1240 Sussex Turnpike
Randolph, NJ 07869
Voice: 973-895-4445
Fax: 973-895-4846
Website: http://www.sturge-weber.org
E-mail: ahoward@sturge-weber.org
Verified: 8/13/2013

This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.

Classes & Events

  • Sep
    18
    Thursday
    5:00 PM - 7:00 PM
    HEALTHFAST is a medically supervised weight loss program, designed for safe and significant weight loss, committed to the treatment of obesity and the reduction of medical risk factors.
  • Sep
    20
    Saturday
    10:30 AM - 11:30 AM
    This is a medically-based yoga class specifically designed for Multiple Sclerosis patients. The session will help participants increase strength, balance and flexibility.
  • Sep
    22
    Monday
    5:30 PM - 6:30 PM
    This class will focus on the health benefits of fresh juice and smoothies.