Skip to Content

Von Hippel Lindau

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

VHL Alliance (Von Hippel-Lindau Syndrome)

(MULTILINGUAL) International network. 35 US chapters; 18 foreign affiliates. Founded 1993. Opportunity for families affected by Von Hippel Hippel Linday to share their knowledge and experiences with each other and the medical community. With patients at the focus of organization, the VHL Alliance is dedicated to research, education, and support to improve diagnosis, treatment, and quality of life for those affected by VHL. Newsletter, phone and online support, education, tissue bank and handbook. Literature available in Spanish, German, French, Japanese, Dutch and other languages. Funds research. Assistance in starting local chapters.
VHL Family Alliance
2001 Beacon St., Suite 208
Boston, MA 02135-7787
Voice: 1-800-767-4845 or 617-277-5667
Fax: 858-712-8712
Verified: 7/23/2013

This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.

Classes & Events

  • Oct
    7:45 AM - 9:00 AM
    Learn how to prepare for and make the most of your physician's visit.
  • Oct
    12:00 PM - 1:00 PM
    Walk away from this one-hour learning experience with powerful tips for a longer healthier life.
  • Oct
    6:00 PM - 7:00 PM
    A registered nurse from The Family Place - Maternity will facilitate this open discussion.