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Von Hippel Lindau

Self Help Clearinghouse

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VHL Alliance (Von Hippel-Lindau Syndrome)

(MULTILINGUAL) International network. 35 US chapters; 18 foreign affiliates. Founded 1993. Opportunity for families affected by Von Hippel Hippel Linday to share their knowledge and experiences with each other and the medical community. With patients at the focus of organization, the VHL Alliance is dedicated to research, education, and support to improve diagnosis, treatment, and quality of life for those affected by VHL. Newsletter, phone and online support, education, tissue bank and handbook. Literature available in Spanish, German, French, Japanese, Dutch and other languages. Funds research. Assistance in starting local chapters.
Write:
VHL Family Alliance
2001 Beacon St., Suite 208
Boston, MA 02135-7787
Voice: 1-800-767-4845 or 617-277-5667
Fax: 858-712-8712
Website: http://www.vhl.org
Verified: 7/23/2013

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Classes & Events

  • Oct
    27
    Monday
    10:00 AM - 11:00 AM
    Yoga for Arthritis is a medically-based yoga class specifically designed to improve pain and mobility. This class is for people experiencing joint pain.
  • Oct
    27
    Monday
    6:00 PM - 8:30 PM
    A unique method of relaxed, natural childbirth education, enhanced by self-hypnosis techniques.
  • Oct
    27
    Monday
    6:30 PM - 7:30 PM
    Learn how to avoid negative emotions and behaviors around food when talking about your child’s weight. Learn how to be sensitive, provide praise, keep food positive and how to avoid negative body talk.