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Urea Cycle Disorders

Self Help Clearinghouse

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National Urea Cycle Disorders Foundation

National network. Founded 1989. Links families, friends and professionals who are dedicated to the identification, treatment and cure of urea cycle disorders, which are genetic disorders causing an enzyme deficiency in the urea cycle. Supports research, educates medical professionals, affected patients and families and the public. Provides information, referrals and networks families together for support. Phone and online support, literature and newsletter.
Write:
National Urea Cycle Disorders Foundation
75 South Grand Ave.
Pasadena, CA 91105
Voice: 626-578-0833
Fax: 626-578-0823
Website: http://www.nucdf.org
Verified: 2/18/2014

TRUE Kids

(Transplanted to Resolve Ure-cycle Enzyme-deficiency) Online. Mutual support and information for families of transplanted children with urea cycle disorder.
Website: http://www.true-kids.org
Verified: 2/12/2014

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