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Undiagnosed Illness

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Hearts and Hands

Model. 1 group in NC. Founded 1993. Emotional, spiritual and educational support for persons with either rare or undiagnosed illnesses and their families. Special interest in loin pain hematuria syndrome.
Write:
Hearts and Hands
c/o Winoka Plummer
1648 Oliver's Crossing Circle
Winston-Salem, NC 27127
Verified: 3/5/2014

Syndromes Without A Name (SWAN) USA

National. Founded 2004. Mutual support network and information for parents of children with an undiagnosed or unnamed condition. Newsletter and E-list discussion group for parents to share information and provide each other with support.
Write:
Syndromes Without A Name
1745 Lorna Lane
Otsego, MI 49078
Voice: 1-888-880-7926 or 269-692-2090
Website: http://www.undiagnosed-usa.org
E-Mail: amyclugston@undiagnosed-usa.org
Verified: 3/12/2014

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Classes & Events

  • Oct
    31
    Friday
    1:30 PM - 3:30 PM
    An education and support group for women recently diagnosed with breast or gynecological cancer.
  • Nov
    3
    Monday
    4:00 PM - 5:00 PM
    This beginner routine is suitable for anyone regardless of age, health, flexibility or previous experience.
  • Nov
    3
    Monday
    4:00 PM - 5:00 PM
    This orientation is intended to be a general information session on several of our popular weight management programs.