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Turner's Syndrome

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Turner Syndrome Society of Canada

International. 5 chapters. Founded 1981. Provides support and education to Turner syndrome patients and their families. Tapes, publications, referrals to U.S. and Canadian groups. Newsletter, pen pal program, chapter development guidelines and annual conference.
Turner Syndrome Society of Canada
30 Cleary Avenue, Room 9
Ottawa, ON, CANADA K2A 4A1
Voice: 1-800-465-6744
Fax: 613-321-2268
Verified: 7/17/2013

Turner Syndrome Support Network

National network. Founded 1989. Network and exchange of information for parents of children with Turner's syndrome. Information and referrals, phone support, pen pals, conferences, literature, annual convention and newsletter. Annual membership $35/yr. (US); $50/yr. (Canada); $60/yr. (overseas).
Turner Syndrome Support Network
c/o MAGIC Foundation
6645 W. North Ave.
Oak Park, IL 60302
Voice: 1-800-362-4423 or 708-383-0808
Fax: 708-383-0899
Verified: 8/13/2013

Turner Syndrome Society of the U.S.

National. Founded 1987. Support for individuals affected by Turner syndrome. Increases public awareness and promotes research about the disorder.
Turner Syndrome Society of the US
11250 West Rd. Ste. G
Houston, TX 77065
Voice: 1-800-365-9944
Fax: 832-912-6446
Verified: 9/13/2013

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Classes & Events

  • Sep
    6:00 PM - 7:00 PM
    This open discussion for parents will focus on creating their birth environment, comfort measures, positions for labor and other general questions about labor.
  • Sep
    10:00 AM - 11:30 AM
    Providing a supportive environment for postpartum parents and their babies to learn and connect with others.
  • Sep
    2:30 PM - 3:30 PM
    This tour allows siblings to visit The Family Place before the arrival of the baby and ways to increase the siblings' participation.