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Proteus Syndrome

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Proteus Syndrome Foundation

International network. Founded 1991. Provides support and education for individuals and/or families of children with Proteus syndrome. Supports research into the cure of this disorder. Newsletter, pen pals, literature and database of families. Fundraising.
Write:
Proteus Syndrome Foundation
4915 Dry Stone Drive
Colorado Springs, CO 80923
Voice: Kim 719-660-1346 (day) or Barbara 901-756-9375 (day)
Website: http://www.proteus-syndrome.org
E-mail: kimhoag201@gmail.com or jakebabs@aol.com
Verified: 8/25/2011

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Classes & Events

  • Oct
    20
    Monday
    12:00 PM - 1:00 PM
    Learn positive parenting strategies and solutions to help your children become healthy eaters.
  • Oct
    20
    Monday
    4:00 PM - 5:00 PM
    A computerized test of memory, reaction time, processing speed and concentration.
  • Oct
    20
    Monday
    6:00 PM - 8:30 PM
    This program is designed for women and their partners who have experienced a previous childbirth.