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Proteus Syndrome

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Proteus Syndrome Foundation

International network. Founded 1991. Provides support and education for individuals and/or families of children with Proteus syndrome. Supports research into the cure of this disorder. Newsletter, pen pals, literature and database of families. Fundraising.
Write:
Proteus Syndrome Foundation
4915 Dry Stone Drive
Colorado Springs, CO 80923
Voice: Kim 719-660-1346 (day) or Barbara 901-756-9375 (day)
Website: http://www.proteus-syndrome.org
E-mail: kimhoag201@gmail.com or jakebabs@aol.com
Verified: 8/25/2011

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Classes & Events

  • Oct
    27
    Monday
    10:00 AM - 11:00 AM
    Yoga for Arthritis is a medically-based yoga class specifically designed to improve pain and mobility. This class is for people experiencing joint pain.
  • Oct
    27
    Monday
    6:00 PM - 8:30 PM
    A unique method of relaxed, natural childbirth education, enhanced by self-hypnosis techniques.
  • Oct
    27
    Monday
    6:30 PM - 7:30 PM
    Learn how to avoid negative emotions and behaviors around food when talking about your child’s weight. Learn how to be sensitive, provide praise, keep food positive and how to avoid negative body talk.