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Primary Lateral Sclerosis

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

ALS Forums

Online. 550+ members. Support, information and sharing of experiences for persons with amyotrophic lateral sclerosis (Lou Gehrig's disease) and motor neuron diseases, their families and friends. Also includes primary lateral sclerosis, progressive muscular atrophy and multifocal motor neuropathy.
Website: http://www.alsforums.com
Verified: 7/26/2012

PLS Friends

Online. Opportunity for persons with primary lateral sclerosis or hereditary spastic paraplegia, progressive neuromuscular disorders, to share information and support via an online discussion group. Fosters support and an exchange of ideas among PLSand HSP patients, their relatives, caregivers and health care professionals.
Write:
PLS Friends
PO Box 117
Sherman, CT 06784
Website: http://health.groups.yahoo.com/group/pls-friends
E-mail: PLS-FRIENDS-owner@yahoogroups.com
Verified: 1/8/2013

Spastic Paraplegia Foundation, Inc.

National. Founded 2002. Offers support and information to those affected by primary lateral sclerosis and hereditary spastic paraplegia. Supports research. Offers regional and e-mail support groups, online chat group, newsletter and information.
Voice: 1-877-773-4483
Website: http://www.sp-foundation.org
E-mail: information@sp-foundation.org
Verified: 1/24/2013

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Classes & Events

  • Oct
    27
    Monday
    10:00 AM - 11:00 AM
    Yoga for Arthritis is a medically-based yoga class specifically designed to improve pain and mobility. This class is for people experiencing joint pain.
  • Oct
    27
    Monday
    6:00 PM - 8:30 PM
    A unique method of relaxed, natural childbirth education, enhanced by self-hypnosis techniques.
  • Oct
    27
    Monday
    6:30 PM - 7:30 PM
    Learn how to avoid negative emotions and behaviors around food when talking about your child’s weight. Learn how to be sensitive, provide praise, keep food positive and how to avoid negative body talk.