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Neurofibromatosis

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Neurofibromatosis, Inc.

National. 10 regional groups. Founded 1988. Dedicated to individuals and families affected by the neurofibromatoses (NF-1, NF-2 and Schwannomatosis) through education, support, a summer camp, clinical and research programs. Newsletter, networking, printed materials, phone support, information and referrals. Assistance in starting groups.
Write:
Neurofibromatosis, Inc.
P.O. Box 66884
Chicago, IL 66884
Voice: 630-530-1115 or 1-800-942-6825 (patient inquiries)
Website: http://www.nfnetwork.org
E-mail: admin@nfnetwork.org
Verified: 9/13/2013

Children's Tumor Foundation

(BILINGUAL) National. 50 chapters. Founded 1978. Support for patients with neurofibromatosis and their families. Promotes and supports research on the causes of, and cure for NF. Provides information, quarterly newsletter, assistance and education. Dues $40/year.
Write:
Children's Tumor Foundation
95 Pine St., 16th Fl.
New York, NY 10005
Voice: 1-800-323-7938 or 212-344-6633
Fax: 212-747-0004
Website: http://www.ctf.org
E-mail: info@ctf.org
Verified: 9/13/2013

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