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Leukodystrophy

Self Help Clearinghouse

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United Leukodystrophy Foundation, Inc.

National network. Founded 1982. Provides information and resources for leukodystrophy patients and their families. Communication network among families. Promotes research, public and professional awareness. National conference and quarterly newsletter. Dues $35/family; $70/professional.
Write:
United Leukodystrophy Foundation, Inc.
224 N. 2nd St., Ste 2
DeKalb, IL 60115
Voice: 1-800-728-5483 or 815-748-3211
Fax: 815-748-0844
Website: http://www.ulf.org
E-mail: office@ulf.org
Verified: 7/17/2013

MLD Foundation

Online. Support for parents and caregivers of loved ones with metachromatic leukodystrophy.
Write:
MLD Foundation
21345 Miles Drive
West Linn, OR 97068-2878
Website: http://mldfoundation.org
E-mail: info@mldfoundation.org
Verified: 7/17/2013

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