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Hermansky-Pudlak Syndrome

Self Help Clearinghouse

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Hermansky-Pudlak Syndrome Network

International network. 2 affiliated groups. Founded 1992. Mutual support and education for families affected by Hermansky-Pudlak Syndrome and Chediak Higashi Syndrome. Networks families together for support. Newsletter and annual conference. Supports research.
Write:
Hermansky-Pudlak Syndrome Network
c/o Donna Jean Appell
1 South Rd.
Oyster Bay, NY 11771-1905
Voice: 1-800-789-9477 or 516-922-4022
Fax: 516-624-0640
Website: http://www.hpsnetwork.org, http://www.hermansky-pudlak.org or http://www.chediak-higashi.org
E-mail: dappell@hpsnetwork.org
Verified: 8/13/2013

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Classes & Events

  • Sep
    22
    Monday
    5:30 PM - 6:30 PM
    This class will focus on the health benefits of fresh juice and smoothies.
  • Sep
    22
    Monday
    6:00 PM - 8:30 PM
    Mindfulness-Based Stress Reduction is a powerful program that teaches how to live directly with your moment-by-moment life experiences in affirming way.
  • Sep
    22
    Monday
    6:00 PM - 8:30 PM
    In this orientation, you will learn about the history, science, risks and benefits of attending to your life, moment-by-moment. You'll experience a sample MBSR class, including experiential practice and class exploration about this life-affirming approach.

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