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Hermansky-Pudlak Syndrome

Self Help Clearinghouse

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Hermansky-Pudlak Syndrome Network

International network. 2 affiliated groups. Founded 1992. Mutual support and education for families affected by Hermansky-Pudlak Syndrome and Chediak Higashi Syndrome. Networks families together for support. Newsletter and annual conference. Supports research.
Write:
Hermansky-Pudlak Syndrome Network
c/o Donna Jean Appell
1 South Rd.
Oyster Bay, NY 11771-1905
Voice: 1-800-789-9477 or 516-922-4022
Fax: 516-624-0640
Website: http://www.hpsnetwork.org, http://www.hermansky-pudlak.org or http://www.chediak-higashi.org
E-mail: dappell@hpsnetwork.org
Verified: 8/13/2013

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    Thursday
    5:00 PM - 7:00 PM
    HEALTHFAST is a medically supervised weight loss program, designed for safe and significant weight loss, committed to the treatment of obesity and the reduction of medical risk factors.
  • Sep
    20
    Saturday
    10:30 AM - 11:30 AM
    This is a medically-based yoga class specifically designed for Multiple Sclerosis patients. The session will help participants increase strength, balance and flexibility.
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    22
    Monday
    5:30 PM - 6:30 PM
    This class will focus on the health benefits of fresh juice and smoothies.

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