Skip to Content

Glycogen Storage Disease

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Association For Glycogen Storage Disease

U.S. and Canadian network. 13 affiliated groups. Founded 1979. Mutual support and information sharing among parents of children and patients with glycogen storage disease. Fosters communication between parents, patients and professionals, creates public awareness and encourages research. Offers GSDnet support group via e-mail. Newsletter, phone support and annual family/professional conference.
Write:
Association for Glycogen Storage Disease
P.O. Box 896
Durant, IA 52747
Voice: 563-514-4022
Website: http://www.agsdus.org
E-mail: info@agsdus.org
Verified: 7/16/2013

This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.

Classes & Events

  • Sep
    2
    Tuesday
    6:00 PM - 7:00 PM
    This open discussion for parents will focus on creating their birth environment, comfort measures, positions for labor and other general questions about labor.
  • Sep
    3
    Wednesday
    10:00 AM - 11:30 AM
    Providing a supportive environment for postpartum parents and their babies to learn and connect with others.
  • Sep
    8
    Monday
    2:30 PM - 3:30 PM
    This tour allows siblings to visit The Family Place before the arrival of the baby and ways to increase the siblings' participation.