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Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Cystinosis Research Network

National. Founded 1996. Dedicated to supporting and advocating for continued research, providing family support and education programs. Professionals and caregivers are welcome to join. Promotes and supports research that will lead to a better understanding, improved treatments and a cure for cystinosis. Dedicated to improving awareness and education of cystinosis to be utilized as a resource for families and public. Programs include support group, networking, toll-free number, website, newsletter and family conferences. Website to improve awareness and education of cystinosis for patients, families and physicians. Non-moderated but members must be pre-approved.
Cystinos Research Foundation
302 Whytegate Ct.
Lake Forest, IL 60045
Voice: 847-735-0471; Toll-free 1-866-276-3669
Verified: 7/26/2013

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Classes & Events

  • Oct
    10:00 AM - 11:00 AM
    Yoga for Arthritis is a medically-based yoga class specifically designed to improve pain and mobility. This class is for people experiencing joint pain.
  • Oct
    6:00 PM - 8:30 PM
    A unique method of relaxed, natural childbirth education, enhanced by self-hypnosis techniques.
  • Oct
    6:30 PM - 7:30 PM
    Learn how to avoid negative emotions and behaviors around food when talking about your child’s weight. Learn how to be sensitive, provide praise, keep food positive and how to avoid negative body talk.