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Barth Syndrome

Self Help Clearinghouse

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Barth Syndrome Foundation

(MULTILINGUAL) International. Founded 2000. Offers support to persons with Barth syndrome and their families. Provides information, support, awareness, medical database and repository, diagnostic and clinical descriptions and fact sheets. Moderated listserv referrals, pen-pals and biennial conference. Peer-to-peer mentoring program.
Barth Syndrome Foundation, Inc.
P.O. Box 618
Larchmont, NY 10538
Voice: 850-273-6947
Fax: 518-213-4061
Verified: 9/4/2013

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Classes & Events

  • Sep
    5:00 PM - 7:00 PM
    HEALTHFAST is a medically supervised weight loss program, designed for safe and significant weight loss, committed to the treatment of obesity and the reduction of medical risk factors.
  • Sep
    10:30 AM - 11:30 AM
    This is a medically-based yoga class specifically designed for Multiple Sclerosis patients. The session will help participants increase strength, balance and flexibility.
  • Sep
    5:30 PM - 6:30 PM
    This class will focus on the health benefits of fresh juice and smoothies.