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Status Epilepticus

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Status Epilepticus is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Convulsions
  • Seizures

Disorder Subdivisions

  • Grand Mal Epilepsy
  • Major Epilepsy
  • Status Epilepticus
  • Jacksonian Epilepsy
  • Focal Epilepsy
  • Myoclonic Progressice Familial Epilepsy
  • Unverricht Syndrome
  • Lundborg-Unverricht Disease
  • Unverricht-Lundborg-Laf Disease
  • Petit Mal Epilepsy
  • Minor Epilepsy
  • Pyknoepilepsy
  • Akinetic Seizure
  • Myoclonic Seizure
  • Myoclonic Astatic Petit Mal Epilepsy
  • Petit Mal Variant
  • Febrile Seizures
  • Psychomotor Epilepsy
  • Temporal Lobe Epilepsy
  • Psychomotor Equivalent Epilepsy
  • Psychomotor Convulsion
  • Epilepsia Procursiva
  • Abdominal Epilepsy

General Discussion

Status epilepticus (SE) is considered a neurological emergency. Left untreated (or undertreated), prolonged seizures can cause permanent neurological injury or death. Rapid treatment must be initiated. If initial agents fail, it may be necessary to induce an iatrogenic coma. In any case, the person in status epilepticus must be closely watched, and often requires continuous EEG in order to confirm that the seizures have stopped not only clinically but electrically as well.

Resources

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com

Epilepsy Foundation
8301 Professional Place
Landover, MD 20785-7223
Tel: (866)330-2718
Fax: (877)687-4878
Tel: (800)332-1000
TDD: (800)332-2070
Email: ContactUs@efa.org
Internet: http://www.epilepsyfoundation.org

PHP - Parents Helping Parents, Inc.
Sobrato Center For Nonprofits San Jose
1400 Parkmoor Avenue,
Suite 100
Santa Clara, CA 95126
USA
Tel: (408)727-5775
Fax: (408)286-1116
Tel: (866)747-4040
Email: info@php.com
Internet: http://www.php.com

NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/

AED Pregnancy Registry - Massachusetts General Hospital
121 Innerbelt Road, Room 220
Somerville, MA 02143
Tel: (617)724-9550
Fax: (617)724-8307
Tel: (888)233-2334
Email: holmes.lewis@mgh.harvard.edu
Internet: http://www.aedpregnancyregistry.org

American Epilepsy Society
342 North Main Street
West Hartford, CT 06117-2507
Tel: (860)586-7505
Fax: (860)586-7550
Email: khucks@aesnet.org
Internet: http://www.aesnet.org

Epilepsy Canada
2900 John St., Suite 402
Markham
Ontario, L3R 5G3
Canada
Fax: 9055139461
Tel: 8777340873
Internet: http://www.epilepsy.ca

Organisation For Anti-Convulsant Syndrome
131 Summertrees Road
Ellesmere Port
Cheshire, CH66 2BE
United Kingdom
Tel: 01513565949
Email: enquiries.oacs@gmail.com
Internet: http://www.oacs-uk.co.uk/

New Horizons Un-Limited, Inc.
811 East Wisconsin Ave
P.O. Box 510034
Milwaukee, WI 53203
USA
Tel: (414)299-0124
Fax: (414)347-1977
Email: horizons@new-horizons.org
Internet: http://www.new-horizons.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Dravet.org
P.O. Box 797
Deale, MD 20751
USA
Tel: (443)607-8267
Email: info@Dravet.org
Internet: http://www.dravet.org

LGS Foundation, Inc.
192 Lexington Avenue
New York, NY 10016
Tel: (718)374-3800
Email: christina@lgsfoundation.org
Internet: http://www.lgsfoundation.org

Matthew's Friends
St. Piers Lane
Lingfield
Surrey, RH7 6PW
United Kingdom
Tel: 01342836571
Fax: 07884054811
Tel: 07884054811
Email: enq@matthewsfriends.org
Internet: http://www.matthewsfriends.org

Child Neurology Foundation
201 Chicago Ave, #200
Minneapolis, MN 55415
USA
Tel: (952)641-6100
Fax: (952)881-6276
Tel: (877)263-5430
Email: jstone@childneurologyfoundation.org
Internet: http://www.childneurologyfoundation.org

CURE: Citizens United for Research in Epilepsy
223 W. Erie
Suite 2SW
Chicago, IL 60654
Tel: (312)765-7118
Fax: (312)255-1801
Tel: (800)765-7118
Email: info@CUREepilepsy.org
Internet: http://www.CUREepilepsy.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  1/3/2007
Copyright  1985, 1989, 1990, 1991, 1992 1992, 1993, 1994, 1995, 1996, 1997, 1998, 1999, 2000, 2002, 2007 National Organization for Rare Disorders, Inc.

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