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Hydrocephalus

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Hydrocephalus is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Hydrocephaly
  • Water on the Brain

Disorder Subdivisions

  • Communicating Hydrocephalus
  • Non-Communicating Hydrocephalus
  • Obstructive Hydrocephalus
  • Internal Hydrocephalus
  • Normal Pressure Hydrocephalus
  • Benign Hydrocephalus

General Discussion

Hydrocephalus is a condition in which abnormally widened (dilated) cerebral spaces in the brain (ventricles) inhibit the normal flow of cerebrospinal fluid (CSF). The cerebrospinal fluid accumulates in the skull and puts pressure on the brain tissue. An enlarged head in infants and increased cerebrospinal fluid pressure are frequent findings but are not necessary for the diagnosis of Hydrocephalus. There are several different forms of Hydrocephalus: communicating hydrocephalus, non-communicating hydrocephalus or obstructive hydrocephalus, internal hydrocephalus, normal pressure hydrocephalus, and benign hydrocephalus.

Resources

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com

The Arc
1825 K Street NW, Suite 1200
Washington, DC 20006
Tel: (202)534-3700
Fax: (202)534-3731
Tel: (800)433-5255
TDD: (817)277-0553
Email: info@thearc.org
Internet: http://www.thearc.org

National Hydrocephalus Foundation
12413 Centralia Rd.
Lakewood, CA 90715-1653
USA
Tel: (562)924-6666
Fax: (562)924-6666
Tel: (888)857-3434
Email: nhf@earthlink.net
Internet: http://www.nhfonline.org

Hydrocephalus Association
4340 East West Highway Ste 950
Bethesda, MD 20814
USA
Tel: (301)202-3811
Fax: (301)202-3813
Tel: (888)598-3789
Email: info@hydroassoc.org
Internet: http://www.hydroassoc.org

International Federation for Spina Bifida and Hydrocephalus
Cellebroersstraat 16
Brussels, B1000
Belgium
Tel: 32025020413
Fax: 32025021129
Email: info@ifglobal.org
Internet: http://www.ifglobal.org

NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/

Shine
42 Park Road
Peterborough, PE1 2UQ
United Kingdom
Tel: 01733555988
Fax: 08454507755
Email: info@shinecharity.org.uk
Internet: http://www.shinecharity.org.uk/

Hydrocephalus Support Group, Inc.
1933 Mistflower Glen Ct.
Chesterfield, MO 63005-4236
USA
Tel: (636)532-8228
Fax: (314)251-5871
Email: hydrob@earthlink.net

Birth Defect Research for Children, Inc.
976 Lake Baldwin Lane
Orlando, FL 32814
USA
Tel: (407)895-0802
Email: staff@birthdefects.org
Internet: http://www.birthdefects.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Hydrocephalus Foundation, Inc.
910 Rear Broadway
Route 1
Saugus, MA 01906
Tel: (781)942-1161
Fax: (781)231-5250
Email: HyFII@netscape.net
Internet: http://www.hydrocephalus.org

Spina Bifida & Hydrocephalus Association of Ontario
555 Richmond St W
PO Box 103
Ste 1006
Toronto, Ontario, M5V 3B1
Canada
Tel: 4162141056
Fax: 4162141446
Tel: 8003871575
Email: provinivial@sbhao.on.ca
Internet: http://www.sbhao.on.ca

Spina Bifida Hydrocephalus Queensland
PO Box 8022
Woolloongabba
Queensland, 4102
Australia
Tel: (07) 3844 4600
Fax: (07) 3844 4601
Email: info@sbhqueensland.org.au
Internet: http://www.spinabifida.org

Dandy-Walker Alliance, Inc.
10325 Kensington Pkwy
Suite 384
Kensington, MD 20895
Tel: (877)326-3992
Email: comments@dandy-walker.org
Internet: http://www.dandy-walker.org

International Hydranencephaly Support Group
11634 203rd Street
Maple Ridge BC, V2X 4T9
Canada
Tel: 6044598691
Email: angelbearmom@shaw.ca
Internet: http://www.hydranencephaly.com

Chiari & Syringomyelia Foundation
290 Broadhollow Road, Suite 210E
Melville, NY 11747
Tel: (516)228-3565
Internet: http://www.CSFinfo.org

Fetal Hope Foundation
9786 South Holland Street
Littleton, CO 80127
USA
Tel: (303)932-0553
Tel: (877)789-4673
Email: info@fetalhope.org
Internet: http://www.fetalhope.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  1/8/2007
Copyright  1984, 1985, 1987, 1988, 1989, 1992, 1995, 1997, 1999, 2002, 2007 National Organization for Rare Disorders, Inc.

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